20 Feb
Living With Fibromyalgia
I’m off work again today, and then my boss will not understand these four days off. Sometimes I think nobody ever understands. Even the doctors have no idea. “Anything we can do is try to treat it symptomatically:” My doctor told me.
According to the Mayo Clinic’s website (a wonderful resource for anything medical), Fibromyaligia is an incurable disease which causes joint swelling and pain. Typically, patients with fibromyalgia also have IBS (irritable bowel syndrome) and RLS (Restless Legs Syndrome), together with a multitude of other problems. For me, the pain in my knee when I started was higher than 10 My mother started me the doctors of the time I 11 was. Over the years I have been tested for absolutely everything, and at one time or another, I have ‘diagnosed’ with almost everything. A very frustrated doctor told my mother that he had ideas, and I have to fake. My mother knew very intuitive, I was not Faking The swelling, and she knew it was painful for me.
Over a period of 34 years, I have met, prodded, injected, radiopaque, MRI’d reprinted, in therapy, to psychologists, and a variety of other mental health personnel. Last night, 34 years later, I was told was fibromyalgia. Amazingly, with the help of the Mayo Clinics website, I went to the doctor three months ago with my list of symptoms and told him that I have fibromyalgia. After three months of references and further testing, he agreed with me.
Living with Fibromyalgia: When you awaken in the morning, every joint in your body pain and feel stiff, like arthritis. Swelling can be easily recognized. You feel like you have not yet slept. Your legs are not always right and the chances of tripping over your own feet are enormous. You are trying to press through the pain and get on with your day. They fight the depression and make you move. Push through the pain and make it through the day. Plan your route to work can be a very interesting, because your limbs do not want to work with your brain. You will receive your car very carefully, so as not to fall on your face at the parking lot.
The stress of ‘pushing through the pain “Tears usually your nerves to your IBS kick on and go as fast as you are in a position to the bathroom, where your stomach explode from the pressure.
They make it on your desk, start to work, and then restart your legs jump uncontrollably from the RLS. During the work day, you get up several times to keep them from too stiff to move, but every time you do this, you think of something to keep from falling. They work harder to stay awake than you in your work. The fatigue is the most typical of all symptoms. At work, it is easily misinterpreted as being too slow, uninterested, dissolved, bored, unorganized, etc.
They make it back home, and even if you want to sleep, you make dinner for your family. Next, press through the pain and the cleaning of the kitchen. Your joints are very swollen now, and they hurt. For your hips, you are exhausted and want nothing more than sleep. They lay down finally to rest, and your legs decide it’s time to run track, and they do not even realize that your upper body will not cooperate. The frustration shocks your stomach.
I am currently seven different medications daily to treat the symptoms. I used to groom dogs for a living and I love to dance, and I can not do more. I love to write, but the action it takes to write hurts my wrists and elbows. The input is better, but it makes your fingers, wrists and shoulders hurt, too. I Love playing pool. Unfortunately, the force it takes to break feels like it breaks my elbows. I still insist that pain, it is my only social activity. I do not know how long I can to continue.
If this in writing helps a person better understand the disease, then I am glad that I still can give. If you know someone with this debilitating illness, or if you have, the Mayo Clinic website and learn everything you can. To know someone understands how you feel really helps in alleviating the emotional side of this disease.

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